To continue with Update, Part 1, we took our Lovebug back to see his Pediatric GI last week. The visit went well. After catching Dr. Z up to speed as to what has been going on since L's last visit to his office, he agreed that the medicine one of our pediatricians suggested we try was the one he would recommend. However, LJ will have to take it every night indefinitely. The pediatrician said he thought we could try it for just a month, but the Pedi GI clarified that in order to use it as a preventative medicine for Lovebug's CVS, he would need to be on it daily. And IF he does have another episode while taking it, we still have room to increase the dosage and try it again. We are A O.K. with this plan - the side effects are minimal and the risk is low with this particular medicine. We have already noticed this week that L's appetite seems to be leveling off and he isn't crying and begging to eat constantly. He still might gain a little bit of weight b/c of the medicine, but we all feel it is worth a couple of extra pounds if this will keep him out of the hospital!
Dr. Z said this medicine has worked for some CVS patients. We hope and pray Lovebug is in that group! So now, we wait. And in the meantime, have the end of school RUSH to keep us busy!!!!
My mom ordered this book for Lovebug. It was written by the mother of a little girl who was diagnosed at a young age with CVS. It is a precious, sweet book. After I read it to my sweetie for the first time, I asked him if he liked it. He told me in quite a few words that he did not like it and did not want to read it again (this is not a commentary on the book - again, it is a WONDERFUL book and very gently worded for children). He said one of the faces looked sad and that made him sad. I think, for now, it is a lot for a 4-year-old to process. So when his hospital visits do come up, we focus on the good - the nice nurses that bring him cereal when he wakes up, and the pretty flowers and blankets the volunteers have given him. And now, we can say it is possible he may not have to go back for a while if this medicine works. So he takes the stinky smelling "yellow medicine" without any complaints every night. Our brave Lovebug. :)
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